epilepsy · first aid · Living with Epilepsy · Seizure · The seizure queen

Seizures or Break dancing?

I want to remind people, that, not all seizures are break dancing on the floor (no offence intended), those well known, associated seizures are called Grand Mals and are the biggest type of seizure, but I also have three other kinds.
Myoclonic – where I loose consciousness for split seconds, my hands, arm and legs jerk violently and loose grip and balance. My eyes also roll in my head every time I have one, (these are my most common kind and can happen through the WHOLE day). Absences,  a simple staring into space, vacant look on the outside, but on the inside an electrical pulse sending false waves through the brain. I loose out on whole conversations due to these. Finally, A Tonic, which are really similar to Myoclonic expect it is a sudden loss of strength in limbs (mainly my legs) causing me to collapse suddenly to the floor.

For whole weeks, I miss out on important lectures (not a good start for my first year), seeing my friends, being able to do house work, being able to cook and being a mama. O is amazing, he knows when I’m having a bad day, and he even tries to help me, love his heart.

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This first posts main aim however is to educate people. The amount of people that have epilepsy is extremely high, whether born with it, developed it or been unlucky enough to get it from a head injury. And yet, hardly anyone knows there are more than one type of seizure, and barely anyone is aware of what to do if you experience someone having a seizure. So I thought I’d just clue you all in. It’s really not hard, you just need to know.

If you see someone having a grand Mal seizure ( the break dancing), there are a few easy to remember rules:-

  1. Get out some way to time the seizure, and record how long it lasts for, if it lasts OVER 5 minutes, phone 999 immediately.
  2. Clear the area around the person to the best of your ability, this is important so they do not harm themselves. DO NOT MOVE THEM!!
  3. If able to, place something soft, like a coat or jumper under their head.
  4. Check the person for any Medical jewellery or information. If they do not have any, or are not an epileptic, it is best to call an ambulance regardless of how long the seizure lasts.
  5. Do NOT, under any circumstances, with strain the person as this will cause more damage.
  6. Stay with the person the whole time, until either medical staff or family have arrived and be reassuringly calm.
  7. If possible, aid with breathing by placing the person into the recovery position after the seizure has finished. (See image below)
  8.  

If you are interested to see the varying response actions for the different kinds of seizures then head over to https://www.epilepsy.org.uk/info/firstaid to have a read.

With any luck, mine will soon be sorted and I can be a mama every day without the worry of needing help.

Never give up and always keep going.

Believe in yourself, no matter what obstacles get in your way.

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